Anyone else with a chronic illness will know what it’s like to ride the merry-go-round of medical professionals; and this year I was referred to a new neurologist, who sent me for updated head MRI scans. It’s been four years since I was initially diagnosed with IIH, so an updated image would help her to …
It’s been five years since I was so sick physically and mentally that I resigned my full time job. I have a neurologist’s diagnosis of Idiopathic Intracranial Hypertension; but if anything, despite all the best efforts that my support network and I have put into getting “better” I keep having setbacks and overall decline. Medical …
So on Facebook I posted this photo of myself today, showing the reality of what it looks like to be sick. Lots of people responded in a bit of surprise, so I think more photos of people being sick should be out there there are so many of us. Maybe some other Spoonies want to …
Bolstered during the night,Clutching bed for comfort on waking. No relief, no answers.Silent plea for care, grim understanding. Plagued and incapable, learning.Last life’s memories, ignorant jewels. Sweetness, poisoned by experience.Let no one else suffer, but they do. Beyond imagination, reality for us.All we can offer, a precious spoon.
I hate answering “how are you?” because the answer is typically “crap”, but the bummer for the asker is a bigger bummer for me who lives it. Yes, others have it worse. Others share similar stories. This is just one small story of one small day. No advice please. Do not make a single suggestion. Tweet me …